Fibromyalgia: It's Not Just About the Pain

I had a thought once, but I lost it.  The Fibro fog came in and stole them all away.  Fibromyalgia is cruel like that.  People assume that the pain is all we have to worry about it.  I would rather be in intense pain 24/7 with no relief than to deal with the myriad of other Fibromyalgia symptoms.  I could stand to live without the blurry vision and the ringing in my ears or how about the dry itchy skin and the nose bleeds. It would be nice if my hair wouldn’t fall out or if I didn’t have bright red cheeks.  The constant dry mouth and yes of course the Fibro fog are two more of the symptoms of Fibromyalgia that push me closer to the edge.  The list goes on and on and even the pain can’t be described as just pain.  It’s more like burning, aching, stabbing and throbbing.  So next time you meet someone with Fibromyalgia take the time to look inside of them.  Remember that Fibromyalgia is real and that the pain, most of the time, is the least of our worries.  Our lives are changing so quickly and it’s hard to keep up.  Most of the time we are able to be happy, but sometimes we just want to die.  We spend a lot of time alone, not because we want to, but because most of the time it’s just easier. We don’t try to be difficult.  Our illness is just difficult to deal with.  It’s lonely.  It’s frustrating.  It’s our new life whether we like it or not.


I am 19 and have mild Fibro. I get the cognitive symptoms a lot--I stutter and forget what I was going to say. It's really frustrating.


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