A Little Awareness Day Laughter

I saw this on a Fibro friends Facebook status and had to post it. Thanks Gary! I had to steal it!

You know you've got brain fog when ... I'm sorry, what were we talking about?
How do you snap someone out of brain fog? I'll tell you when it happens.
You know you've got chronic fatigue syndrome when you wake up in the morning to get ready for your nap.
You know you've got FMS when your cat thinks you spend too much time laying around in warm spots.
How do you identify the grocery list of someone with ME/CFS? It's on the table at home.
You know you've got fibromyalgia when you refer to Vicodin as "the mild stuff."
I used to know a lot of jokes about ME/CFS, but I forgot them all.

You might have FMS/ME/CFS if:

You've got your pharmacist on speed dial.
You tell the cop you're driving slow because of the fog -- and it's sunny out.
You fit the diagnostic criteria for both insomnia and narcolepsy.
You've got more diagnoses than a nursing home.
Your medical chart comes in several volumes.
Old people avoid you because of how much you talk about your health.

Fibromyalgia Awareness Day 2012

Happy Awareness Day!!! I have been in the worst flare ever for what feels like forever now, but as always I keep on keeping on.  I’m hoping for a good day really soon. I really hate the bad days, but they make me appreciate the good days so much more.  When you have an illness like Fibromyalgia it’s a necessity to appreciate the good days to the fullest…be happy, be you, have fun…so when the bad days come you’ll have the strength to get through them.

I cried today because the pain and frustration hit an all-time high and I just couldn’t take it anymore.  I got tired of being strong and faking a smile.  I almost hyperventilated which was weird…I guess I just held in the hurt a little too long this time.  Thankfully I had an awesome friend to vent to and I was back to my normal goofy self less than an hour later.

I hope everyone is having an awesome day. Did you do anything special today to help spread awareness?  As always gentle hugs and lots of love.

Medication Side Effects

I hate all the side effects of my medication.  It’s ridiculous.  I think I would rather deal with the Fibro and PCOS symptoms instead of adding more problems with the medication that’s supposed to help, but it really doesn’t.  I feel like I’m just making myself feel worse with medication, but at the same time if I stop taking it I’m going to feel like I’m not doing anything to make things better.  It’s a vicious cycle and I really don’t know what to do anymore. I’m just frustrated.

Has anyone had problems with Amitryptiline? I started out taking 25mg and now I’m at 50mg, which I started about 3 months ago.  My eyes stay dilated, my blood pressure is going all kinds of crazy and I’ve been getting really anxious…more so than normal.  It’s so hard to tell if it’s side effects of the meds or just the Fibro.  If anyone has any ideas, please share.

Healthy people have no idea how frustrating it is to have a chronic illness.  We get accused of being crazy, but they refuse to understand why we act the way we do and why we say the things we say.  They wouldn’t handle it any better.

K I’m done now. I hope everyone is having a good day. *Gentle Hugs and Lots of Love*