tag:blogger.com,1999:blog-1918677473796519805.comments2023-10-10T21:33:12.021-05:00Surviving FibromyalgiaAnonymoushttp://www.blogger.com/profile/18195461992602534850noreply@blogger.comBlogger38125tag:blogger.com,1999:blog-1918677473796519805.post-77141257652935016112015-11-01T18:55:56.006-06:002015-11-01T18:55:56.006-06:00Don't forget voice loss. This is my most recen...Don't forget voice loss. This is my most recent symptom. I lost my voice for 6 weeks in Feb and it has never been the same since. I find it painful to talk, my voice cuts in and out, and it sounds very raspy now. I am told that this is due to my Fibro. I have been struggling with fibro for 11 years now. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1918677473796519805.post-15278901190395092512015-10-06T17:11:25.109-05:002015-10-06T17:11:25.109-05:00I have Severe fibro. I am 35/f and got it after gi...I have Severe fibro. I am 35/f and got it after giving birth. I got in an accident about 6 yrs ago and life has not been the same since. I get fibro pain but more dibilitating is the attacks I get everyday. I wake up and my legs are so weak i cant hardly walk. It starts as soon as i get up then i get to tgr point where it feels like im having a stroke. I get dizzy, off balance, a feeling like im drugged and fughting for my life. It has even attacked my breathing. These episodes are there there all the time but are the worst with a fibro flare. I am having one now. It has been three weeks and no matter what i do it will not go away. I have horrible head, neck, shoulder, hip, knee, back, hand,wrist pain just to name a few...lol. i cannot seem to wake up but dont fall asleep dyring the day. What i want to know and am desperate to get help with is these outta jo where attacks like im having a stroke. I cant eveb talk, think, my body cannot stand up , i HAVE to get to safety fast! Its been the worst flare up of my 15 yrs of this and im scared to death! I was just trying to cook for my daughter( that i cant take care of anymore cuz i cant work) and all of the sudden i felt so bloody strange and total body weakness and exhastion i fell to the floor! I even start drooling! Plz can someone tell me if they get this???!!! I have seen a neurologist and all they say is " muscle atrophy" idk why. Not a heart issue either and have had every test possible! Lymes, ms.... so on. I feel like im being ruphied or poisoned everyday!!! Plz help. This has taken my daughter from me and i cannot work. Also .. i am not having an anxiety attack. Ive had tgem and this is not that. I am not worried or havin a panic attack.i also cant think , bump into things, drop things, slur, and cant walk in a straight line. If anyone knows a group ir place for me to go for support or advice plz let me know. Thnx for reading,<br />Miss my life. Anonymoushttps://www.blogger.com/profile/05955831511258940023noreply@blogger.comtag:blogger.com,1999:blog-1918677473796519805.post-74744937828468133352015-10-03T06:13:20.646-05:002015-10-03T06:13:20.646-05:00Thank you for putting together such a list. Now it...Thank you for putting together such a list. Now it will be easy to read off to the next person that asks what's wrong with me...lol. I've found the best Med for fibro is laughter. As long as you are laughing, you aren't crying. And anyone with fibro has the right to cry...scream...rant....rave....whatever. I was diagnosed 16 years ago and my condition continues to deteriorate. Recently I've been experiencing those seizures. Sometimes only from the hips down, other times it's the complete body. I've discovered two ways to notice an episode coming on. One, I'll start feeling what I describe as "waves of pain." It just feels like pain washing over you time and again. The second one is I'll start shaking really bad, especially in my hands. I also have hypoglycemia, but I can tell the difference between the two. This gives me the time to lay down and stretch out before the "seizure" hits. I hope these little insights might help others because there is one thing I know for sure...they aren't "in my head"!!<br />Michelle Michellehttps://www.blogger.com/profile/10151563302750326859noreply@blogger.comtag:blogger.com,1999:blog-1918677473796519805.post-75174625787540127342015-07-01T09:35:15.607-05:002015-07-01T09:35:15.607-05:00Can I ask where you retrieved all this info? My is...Can I ask where you retrieved all this info? My issue from friends and even family has always been, where's the scientific proof to back it up. I would love to share your post, but I know they will ask me that question. <br />Is there any way you could post your sources so I could say, see...there! Lol! <br />Thanks,<br />KAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1918677473796519805.post-54297902823346490042015-07-01T09:10:25.368-05:002015-07-01T09:10:25.368-05:00Its a horrible disease to deal with. My daughter w...Its a horrible disease to deal with. My daughter who is 22 has suffered for 6 years+, been awful, her allergies are really bad, antihistamines do not work, any ideas on how she can cope, or anything that might work? Many thanks.<br />Anonymoushttps://www.blogger.com/profile/08201298147550154766noreply@blogger.comtag:blogger.com,1999:blog-1918677473796519805.post-15397055615400292872015-02-01T09:28:14.080-06:002015-02-01T09:28:14.080-06:00We often produce too much insulin. That can cause ...We often produce too much insulin. That can cause seizures. A blood test for insulin and c peptide will reveal.Anonymoushttps://www.blogger.com/profile/11729382922063858787noreply@blogger.comtag:blogger.com,1999:blog-1918677473796519805.post-28677656684621330762015-02-01T09:26:22.942-06:002015-02-01T09:26:22.942-06:00They might be from excess insulin production. Fibr...They might be from excess insulin production. Fibros tend to have low blood sugar. A blood test for insulin and c peptide will reveal.Anonymoushttps://www.blogger.com/profile/11729382922063858787noreply@blogger.comtag:blogger.com,1999:blog-1918677473796519805.post-38154248832414413422015-01-04T05:01:14.557-06:002015-01-04T05:01:14.557-06:00Reading posts like this make me actually understan...Reading posts like this make me actually understand what's my partner going through. <br /><br />Thanks a lot. <br />From Barcelona, LuisAnonymoushttps://www.blogger.com/profile/08158126044767573774noreply@blogger.comtag:blogger.com,1999:blog-1918677473796519805.post-57798045793744102692014-12-22T01:39:09.575-06:002014-12-22T01:39:09.575-06:00I see you and TOTALLY understand!!!
I can't st...I see you and TOTALLY understand!!!<br />I can't stand trying to explain this over and over and being brushed off as if to say "your just lazy" Sometimes I wish people could experience this for a solid 24 hrs!!!Anonymoushttps://www.blogger.com/profile/17995111633971023806noreply@blogger.comtag:blogger.com,1999:blog-1918677473796519805.post-75720000584773201782014-12-22T01:35:06.953-06:002014-12-22T01:35:06.953-06:00I was trying to find out if the seizures I've ...I was trying to find out if the seizures I've had were due to Fibromyalgia, since they have said it's not Epilepsy. The pain and headaches are bad enough, now I'm dealing with brain fog(I hid my daughters Christmas gifts from myself! )memory loss and seizures are awful! Thank you for this informative blog.Anonymoushttps://www.blogger.com/profile/17995111633971023806noreply@blogger.comtag:blogger.com,1999:blog-1918677473796519805.post-75158916182825379312014-09-07T14:22:16.221-05:002014-09-07T14:22:16.221-05:00I've been so afraid it was something serious. ...I've been so afraid it was something serious. :) Jk. Laughter is great medicine��freeatlasthttps://www.blogger.com/profile/14299223053740147461noreply@blogger.comtag:blogger.com,1999:blog-1918677473796519805.post-83421649883741091442014-09-07T13:55:07.193-05:002014-09-07T13:55:07.193-05:00WowWowfreeatlasthttps://www.blogger.com/profile/14299223053740147461noreply@blogger.comtag:blogger.com,1999:blog-1918677473796519805.post-70871119684461058822014-08-21T21:41:21.037-05:002014-08-21T21:41:21.037-05:00I am also suffering with PCOS and Fibro. Thank yo...I am also suffering with PCOS and Fibro. Thank you for a nice compilation of information : )Heather Lasshttp://facebook.com/hlass01noreply@blogger.comtag:blogger.com,1999:blog-1918677473796519805.post-42768876291743833432013-10-31T00:26:10.182-05:002013-10-31T00:26:10.182-05:00I think Taijiquan and Mickel therapy may help. Bes...I think Taijiquan and Mickel therapy may help. Best of wishes.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1918677473796519805.post-46585963313136203432013-10-21T14:18:03.380-05:002013-10-21T14:18:03.380-05:00I think this is among the most important info for ...I think this is among the most important <a href="http://clearviewcenter.net/" rel="nofollow">info</a> for me.<br />And i am glad reading your article. But want to remark on some <br />general things, The site style is perfect, the articles is really excellent : <br />D. Good job, cheersAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1918677473796519805.post-66073889401611953472013-09-28T20:51:12.755-05:002013-09-28T20:51:12.755-05:00I have been searching for this blog, I just know i...I have been searching for this blog, I just know it! I have an 8 yo boy, 2 and 1 yo girls. I am 15+ yr sufferer and 2 month post-diagnosis. Have already been through a dozen different meds with no luck.RachelLouisehttps://www.blogger.com/profile/14913406014688575398noreply@blogger.comtag:blogger.com,1999:blog-1918677473796519805.post-24451242510238296472013-09-05T01:18:22.843-05:002013-09-05T01:18:22.843-05:00Ive been having them more & more. My husband s...Ive been having them more & more. My husband says I wake up screaming help!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1918677473796519805.post-48354216515530625162012-10-21T14:02:18.530-05:002012-10-21T14:02:18.530-05:00Fibro is a killer! I am having a bad flare going o...Fibro is a killer! I am having a bad flare going on day 10 now and I am so feeling your post lol Anonymoushttps://www.blogger.com/profile/03341507827916412151noreply@blogger.comtag:blogger.com,1999:blog-1918677473796519805.post-32009577484854314882012-10-19T23:17:17.395-05:002012-10-19T23:17:17.395-05:00Day at a time, right? I hate it too...hate that n...Day at a time, right? I hate it too...hate that no one "gets it" Thanks for your words..they help to know others are going through the same struggles.50 Shades of Fabuloushttps://www.blogger.com/profile/10790087977144109846noreply@blogger.comtag:blogger.com,1999:blog-1918677473796519805.post-11643806668664743492012-10-04T18:17:03.253-05:002012-10-04T18:17:03.253-05:00Yeah you are talking to me all right! I have the ... Yeah you are talking to me all right! I have the crazy thing ingrained form 35 year ago now lol<br /> I'm a christian! and a writer and a dad and a well I used to be a great preacher too!<br /><br />but over and over BAM fm strikes like thunder and I crawl everything you said is right, but I don't know if you know that F/M is genetic, and runs in families, it also is directly related to Leukemia type 1 diabetes, and Lupus, all three are in the same genetic pool. Cristina I suffer every day like you said ,and now I am pretty much a recluse excuse me for this rant but 'stupid people dont care and they dont understand and they dont care to understand! because the only ones they rally care about is themselves!! lol I care if you want a friend in me I'm here. well okay i'm in Canada, but still here, Hmmm I'm here cause I'm not there!! wait a minute! I not all there, so I'm here!! too deep I give Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1918677473796519805.post-80072389301249138172012-10-04T18:03:57.641-05:002012-10-04T18:03:57.641-05:00LOL Hi Cristina here I am again this is where I ...LOL Hi Cristina here I am again this is where I tried to post a bit ago Binaural Beats help me a lot on certain days,they have really changed my life I had no idea that I had been ill since childhood,and suffered many types of trauma throughout my life time until I started with this treatment 3 years ago now, Delta Binaural beats, and good headphones will knock you out. it's just sound but it synchronizes your brain waves and settles you down enough that you will sleep. Before I found them I would sleep from 10 minutes to an hour when I first went to bed then always woke up thrashing in agony. please give it a try, and if it works for you then share it with your FM friends.<br /><br /> http://www.youtube.com/watch?v=DLq3DYXpAm8<br /><br />If they work come visit me at sharp word and let me know please :)<br /><br />http://www.youtube.com/watch?v=jtoAaBAxnZU<br /><br />http://sharpword.wordpress.com/Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1918677473796519805.post-16131853106251582442012-10-04T17:53:24.040-05:002012-10-04T17:53:24.040-05:00Hi Christina I'm Hubert I just finished writ...Hi Christina I'm Hubert I just finished writing you a long response but couldn't post it it was on you most recent post , I forget the title. I have had F?M since 8, i am 53 now, and it has ruined everything in my life over and over and over again. I fully understand you pain and frustration and anger I deal with the same things 24/7 in the other post you asked for sleep help that is what prompted me to respond<br /><br />if you have headphones listen to this twice before you go to bed it really worked for me<br /><br />http://www.youtube.com/watch?v=DLq3DYXpAm8<br /><br />later if you like you might want to have a read at my blog site, just know that I understand what you live with completely. I live it too<br /><br />http://sharpword.wordpress.com/<br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1918677473796519805.post-56743885841055723262012-09-18T14:13:56.653-05:002012-09-18T14:13:56.653-05:00It is definetely a monster. It has been trying to ...It is definetely a monster. It has been trying to kick my ass for month now....but I keep on, keeping on...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1918677473796519805.post-1448722554505362822012-09-04T00:07:04.230-05:002012-09-04T00:07:04.230-05:00Thanks for your article!Thanks for your article!50 Shades of Fabuloushttps://www.blogger.com/profile/10790087977144109846noreply@blogger.comtag:blogger.com,1999:blog-1918677473796519805.post-56254669361856721302012-09-03T05:11:08.574-05:002012-09-03T05:11:08.574-05:00Fibromyalgia Symptoms are somewhat elusive, becau...<a href="http://www.alcat.com" rel="nofollow"> Fibromyalgia Symptoms </a> are somewhat elusive, because the levels of symptoms vary between patients. Doctors are still studying the condition to determine exactly what causes fibromyalgia and what can be done to cure it.<br />Anonymoushttps://www.blogger.com/profile/10412696061023441101noreply@blogger.com