I spent another hour of my life trying to explain why you
can’t compare two people with Fibromyalgia.
I don’t know why I waste my time.
I hate when someone tells me that so-and-so has Fibromyalgia and they
work and they do this and they do that.
My first question is…How long have they had it? My second is…What medications are they on? If they can answer the questions then I tell
them my story and why I’m different from that person or how I used to be that
person a few years ago. If they can’t
answer the questions then I usually just say we’re all different and we all
react differently to the treatments.
The last thing I thought I would be doing when I finally got
diagnosed was defending the fact that I’m sick.
It’s ridiculous, but yet we face it every day. I was thinking about it today and I started
wondering how many of the Fibromyalgia-related suicides could have been
prevented with just a little more understanding and support. I’m to the point now where I’m saying either
help me fight this battle or get the hell out of my way. I don’t have the time or the patience for
ignorance anymore. I’m sick. There’s no need to discuss it. It is what it is. Until you can walk in my shoes, you can’t
judge my capability so don’t pretend you have me figured out because I assure
you that you never will.
I hope everyone is having an awesome night/day despite the
pain and all the other evil symptoms.
Gentle hugs and lots of love!
1 comments:
Sorry to hear that you are being treated so poorly and really hope that things will improve for you soon. I don't know if you are on FB or not, but I belong to (am also admin now) on a site known as Chronic Pain Sufferers United. We are a great family of people that suffer from all types of chronic pain and need support from one another. Would love for you to join us if you would like to. Also I belong to the Fibromyalgia Family on FB too and they are just people with Fibro. I can understand your frustration and a little understanding from the medical profession really does go a long way. Hugs to you and haven't been here in awhile and thought about you today when I was reading another blog on migraines. Take care and only the very best to you, Lyn Plude
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